Had the 3rd of my lumbar punctures/treatments today and it went well. Set a record and got out of there a little after 11 a.m. - only 2 hours and 15 minutes after they scheduled me to arrive!!! They scheduled me to arrive at 8:45 with the procedure scheduled for 9:30. Two weeks ago I arrived and checked in initially at 8:30 and didn't get out of there until 12:30. The big delay usually (and last time) comes in the mixing of the chemo agent they inject in my spinal fluid. They can't begin mixing until it's confirmed that I've arrived and sometimes it takes a while. Today we arrived at 8:15 or so and after checking in initially, I went on back to the actual radiology surgery desk - though I hadn't been called back yet - and let them know I had arrived so that they could call pharmacy and tell them to mix up the agent. Seemed to work like a charm as they called me back around 9:00, took me back at 9:30 and the procedure was done by 10:00. The manatory hour wait laying down afterwards and we were out of there at 11:00. It's nice when days like this work out like they did today. Also enjoyed the time with my son Sasha who was off work and went with - driving most of the way home.
I have a 4th treatment schedule for the 30th along with an appointment with my doctor. The plan then is to move these to monthly trips/treatments.
Friday, September 17, 2010
Wednesday, August 18, 2010
Cleveland visit 8-17
Hello dear friends,
I'd just like to give an update as to what's going on in our lives. We went to Cleveland Clinic yesterday for a treatment and to meet with Rob's oncologist. He thinks Rob should continue to receive chemotherapy - at least 2-3 more sessions every two weeks and monthly thereafter. And radiation is being scheduled for the spot on Rob's spine. We really didn't receive any new information except for the ongoing chemo. But we do feel that we are getting some of the best medical treatment available and we really like and trust our doctor so we think we're doing all that we can. The chemo and/or steroids are really helping Rob's symptoms too. He feels better than he has all summer and that's good because he goes back to work tomorrow (teaching math at Apollo). I go back (lunch lady-Lima City Schools) on Friday and although we've enjoyed our summer of rest it will be good to be on a schedule. We genuinely appreciate all the prayers, thoughts and kind words from our family and friends. We were reminded in church on Sunday that all good gifts come from God above and we see Him providing gifts to us through all your encouragement.
I'd just like to give an update as to what's going on in our lives. We went to Cleveland Clinic yesterday for a treatment and to meet with Rob's oncologist. He thinks Rob should continue to receive chemotherapy - at least 2-3 more sessions every two weeks and monthly thereafter. And radiation is being scheduled for the spot on Rob's spine. We really didn't receive any new information except for the ongoing chemo. But we do feel that we are getting some of the best medical treatment available and we really like and trust our doctor so we think we're doing all that we can. The chemo and/or steroids are really helping Rob's symptoms too. He feels better than he has all summer and that's good because he goes back to work tomorrow (teaching math at Apollo). I go back (lunch lady-Lima City Schools) on Friday and although we've enjoyed our summer of rest it will be good to be on a schedule. We genuinely appreciate all the prayers, thoughts and kind words from our family and friends. We were reminded in church on Sunday that all good gifts come from God above and we see Him providing gifts to us through all your encouragement.
Wednesday, August 11, 2010
necessary update
Well, looks like it’s time to update the blog again for a few reasons. One, I’ve had some changes in my health that I need to share and two, and unfortunately, that ugly, ignored, glossed over sin called gossip has once again begin to rear its ugly head and information is being shared about me without my knowledge and consequently I have no idea whether is true or not.
Bluntly, medically, it appears as if my lymphoma has returned somewhere in my central nervous system. We’ve been back up to the Cleveland Clinic for some tests and conversations with my doctor. The basis of the diagnosis is mostly symptomatic – I started feeling some weakness on the right side of my body, difficulty swallowing, etc. Tests of the spinal fluid have not been real conclusive but my doctor does believe that something is there because of the symptoms. An MRI of my spine taken in Lima does show evidence of an abnormal growth on the side of my spinal chord. My doctor in Cleveland did begin treatment in my spinal fluid when we were there on Tuesday, August 3 and we’re looking at hopefully continuing those treatments and perhaps adding some radiation to deal with the abnormal growth. My doctor has put me on a regimen including steroids which have made a huge difference in the symtpoms I’ve been experiencing. My swallowing is almost back to normal and my voice, which a week ago was weak and scratchy, is much better.
That aside, Kim and I continue to covet your prayers be directed PRIMARILY in the area of my spiritual life. Although obviously if I had the choice to be healthy or not I would choose to be so but to be honest, my greatest struggle (and Kim adds her greatest grief) lies in the area of simply being obedient day to day. Pray that God would help me to be a godly father, husband, church member, friend, worker and patient throughout this and/or any other trial our Gracious God has lovingly placed in the lives of my wonderful wife and I. Speaking for Kim, I know that her desires are the same. I ask you to reread – or read for the first time perhaps – some of the older posts in this blog to get a sense of what Kim and I are trying real hard to remind ourselves of what is true regarding our physical health and the relative lack of importance of it in God’s eyes. As always, we deeply appreciate, and are many times humbled by, the love and care of so many of our brothers in sisters in Christ who God has graciously put in our lives.
Rob and Kim
Bluntly, medically, it appears as if my lymphoma has returned somewhere in my central nervous system. We’ve been back up to the Cleveland Clinic for some tests and conversations with my doctor. The basis of the diagnosis is mostly symptomatic – I started feeling some weakness on the right side of my body, difficulty swallowing, etc. Tests of the spinal fluid have not been real conclusive but my doctor does believe that something is there because of the symptoms. An MRI of my spine taken in Lima does show evidence of an abnormal growth on the side of my spinal chord. My doctor in Cleveland did begin treatment in my spinal fluid when we were there on Tuesday, August 3 and we’re looking at hopefully continuing those treatments and perhaps adding some radiation to deal with the abnormal growth. My doctor has put me on a regimen including steroids which have made a huge difference in the symtpoms I’ve been experiencing. My swallowing is almost back to normal and my voice, which a week ago was weak and scratchy, is much better.
That aside, Kim and I continue to covet your prayers be directed PRIMARILY in the area of my spiritual life. Although obviously if I had the choice to be healthy or not I would choose to be so but to be honest, my greatest struggle (and Kim adds her greatest grief) lies in the area of simply being obedient day to day. Pray that God would help me to be a godly father, husband, church member, friend, worker and patient throughout this and/or any other trial our Gracious God has lovingly placed in the lives of my wonderful wife and I. Speaking for Kim, I know that her desires are the same. I ask you to reread – or read for the first time perhaps – some of the older posts in this blog to get a sense of what Kim and I are trying real hard to remind ourselves of what is true regarding our physical health and the relative lack of importance of it in God’s eyes. As always, we deeply appreciate, and are many times humbled by, the love and care of so many of our brothers in sisters in Christ who God has graciously put in our lives.
Rob and Kim
Wednesday, February 24, 2010
Wack to bork!
Couldn't resist that Diane Chambers reference from Cheers. I've got the okay to get back to the classroom and plan on being there tomorrow the 25th and Friday the 26th to observe with the intention of begining to teach next Monday, March 1. As usual, Apollo is bending over backwards to help. The wonderful sub who has had my classes all year will be with me in the classroom next week to help and as a standby should I find the need to rest or go home for any reason. Again, I can't begin to convey my appreciation to Apollo for their genorisity and care.
Kim and I have enjoyed worshipping at our church this past month and hope to expand that to attending Sunday School soon as well as our mid week group that meets every other Wednesday. Our church has also been, and continues to be, an incredible blessing to us and we look forward to getting more and more involved.
Kim and I have enjoyed worshipping at our church this past month and hope to expand that to attending Sunday School soon as well as our mid week group that meets every other Wednesday. Our church has also been, and continues to be, an incredible blessing to us and we look forward to getting more and more involved.
Monday, February 1, 2010
sheepish monthly update
I'm definitely getting worse and worse at updating this blog. My sincere apologies. I appreciate so much though that despite my failings, the incredible ministry from you to us through prayer and other means continues. We appreciate that so much.
Had our one month checkup at Cleveland Clinic last Tuesday the 26th. The bloodwork levels all look good and Dr. Smith removed the dietary/social restrictions I was on for the first month so we celebrated by going to the Beer Barrel on Friday and were blessed so much by returning to our wonderful church family for worship on Sunday. Again, Kim and I cannot begin to express our gratefulness to our church. It was wonderful seeing everyone again.
Dr. Smith "strongly" recommended I take another 4 weeks before returning to work so I'm now aiming for a March return to the classroom and will use this month of February to continue to regain strength and easing back into public/social situations. I set up 3/weekly physical therapy today so that will also be part of this month of transition.
We love you all and continue to covet your prayers for God's work in our lives.
Rob
Had our one month checkup at Cleveland Clinic last Tuesday the 26th. The bloodwork levels all look good and Dr. Smith removed the dietary/social restrictions I was on for the first month so we celebrated by going to the Beer Barrel on Friday and were blessed so much by returning to our wonderful church family for worship on Sunday. Again, Kim and I cannot begin to express our gratefulness to our church. It was wonderful seeing everyone again.
Dr. Smith "strongly" recommended I take another 4 weeks before returning to work so I'm now aiming for a March return to the classroom and will use this month of February to continue to regain strength and easing back into public/social situations. I set up 3/weekly physical therapy today so that will also be part of this month of transition.
We love you all and continue to covet your prayers for God's work in our lives.
Rob
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